A lengthy flare has lead to wondering if this is my new "normal". That is a scary thought.
I have been down for about 2 weeks. I've had to force myself to stay in bed when important things needed done, like grocery shopping. I usually do a large shopping trip at the beginning of the month to stock up on most of what we need in a month.
But those trips take a lot of spoons (https://butyoudontlooksick.com/articles/written-by-christine/the-spoon-theory/). Right now I barely have spoons for bare minimum of bathroom trips and eating. Luckily I have a habit of storing a little extra just in case.
If this is my new normal, it will mean having to run the doctor gauntlet again. That's where your General Practitioner sends you to every specialist they can think of to see if someone has some idea of how to help. It's mostly useless, but I keep hoping for a miracle.
Please comment below with any suggestions you have for coping with exceptionally long flares. I'd appreciate some ideas.
